Song Of The Post: “A Change Would Do You Good” By Sheryl Crow
Another crazy few weeks! January is just flying by! Just bust, busy, busy! I thought I would write a quick post just to let everyone know I have officially decided to go off of Tysabri and go on Gilenya. I have discussed this quite a bit in some of my posts so no real big surprise here. However, I didn’t realize how much was involved to go on Gilenya. Switching to Gilenya comes with more blood work, EKG, and several doctor’s visits with different specialist. I have the blood work, EKG and one doctor visit down, just two more doctor visits to go! Hopefully I will be starting on Gilenya sometime in February and feel pretty good about it. The only thing I am concerned about it is that it seems that most people have more headaches during the first month or two but think it will be worth it for having the piece of mind of not being on Tysabri anymore. However, despite me not liking Tysabri, my MRIs showed that I didn’t have any progression while I was on Tysabri so that is great news. Hopefully it will stay that way on Gilenya.
I did receive some bad news during my visit with my neurologist, the numbness on my left side is going to be considered part of my baseline now since it has been constant for the past year. All I can do is stay on my Gabapentin and Carbamazepine and try to keep it in check. I had pretty much come to this conclusion myself but it’s still is never easy to hear it said out loud.
I have started up marathon training again in hopes of running the Kentucky Derby Festival Marathon on April 28 in Louisville, KY. I went to Louisville to go ziplining in the MegaCaverns (which was AWESOME) so looking forward to going back and maybe spending a little more time in Louisville. The training has been going pretty good except some pain in the knees and my right foot that I need to keep an eye on. I believe the pain is mainly due to how I sit at my desk at work so need to pay more attention what I do with my legs and feet.
Well, hopefully things will calm down some so I can actually write about some things I have been meaning to write about for quite a while now. Try to stay warm out there!