Two Weeks Of A MS Life

Sunday (Day 1) – Left for a 5 mile run at 7:15am. At about 3.5 miles into run entire mouth goes numb. After cooling down at home the mouth has calmed down but notice there is a pulsing numbness in left foot, similar to the sensation of a cell phone vibrating. Continues throughout the day. I decide to distract myself with Mario Cart and Xbox Kinect Sports.

Monday (Day 2) – Back to work. Cell Phone Foot still present and really starting to get annoying. Mouth feels off but not too bad. Decide to contact Neurologist about symptoms. Schedule for appointment with Nurse Practitioner for Tuesday morning.

Tuesday (Day 3) – Cell Phone Foot still there. Appointment first thing. Decide I need to go on the “MS Steroids” (aka freaking high dosage of steroids) for the first time in over three to four years. I was able to get steroid pills right after appointment so jump right in. First night didn’t sleep well. Previous rounds of steroids didn’t affect sleep for a few days.

Wednesday (Day 4) – Second day of “MS Steroids”. Cell Phone Foot still there but little more distant. Feeling pretty energized from steroids which is good because first there is a full day of work then off to watch Real Madrid vs Paris Saint Germain at OSU Stadium with boyfriend, Tom and my brother, Mark. (Steroids did help me stay awake for the game…maybe a little too much because I only sleep 3.5 hours that night.)

IMG_6458.JPG

Real Madrid vs Paris Saint Germain at OSU Stadium

IMG_6457.JPG

Thursday (Day 5) – Third day of “MS Steroids”. Cell Phone Foot still there a little but easier to ignore. Feeling pretty good on energy because its second busy day. Full day of work then off to Coldplay concert at Nationwide Arena with Tom! Awesome night! Steroids helped me stay awake again but little too much. Luckily we were in the first row of the balcony so we didn’t have to stand!

IMG_6462.JPG

IMG_6465.JPG

Friday (Day 6) – Fourth day of “MS Steroids”. Back to work. Not feeling the greatest. Tired but also some cognitive fog. Also not the steadiest on my feet. End up leaving work a few hours early and my parents drive me the hour home. (My normal work commute is about 55 minutes, one way.) Spend the rest of the day in bed.

Saturday (Day 7) – Fifth and final day of “MS Steroids”. Absolutely no energy. Feel very weak and have a hard time doing basic every day functions. Have to miss my volunteer shift at CHA Animal Shelter in the afternoon. Old running injuries, IT Band and Back, start to flare and make some sitting uncomfortable. Try to rest as much as possible because my boss will be out of the office the next two weeks on vacation so I will be in charge of the sales department.

Sunday (Day 8) – First day of “normal” dosage of steroids for step down. Assist Tom with changing the oil in my car…well, I sat in a chair and handed him tools. Quickly run out for a grocery trip. Want to rip the head off anyone who gets in my way, even Tom. Stay quiet because it’s the steroids. Come home and complete exhaustion sets in. Going to the bathroom feels overwhelming. Some headaches start. IT Band and Back still hurting but found more comfortable positions.

Monday (Day 9) – Second day of “normal” steroids. Do not feel good. Probably shouldn’t be driving or going to work. Head to work. IT Band and Back still hurting so call primary physician to see if I can get an appointment. Go in that morning. PP able to prescribe me tramadol. Appears stress from steroids has caused some muscle issues and spasms. Left side of neck spasms and stiffens driving back to work from doctor. Decide to leave work early to fill tramadol prescription and to get some rest. Confusion on way tramadol script is written and doctors office already closed. Have to wait until Tuesday to get tramadol. First emotional break down happens. Tired of being in pain and feeling so weak. This isn’t the girl I know!

Tuesday (Day 10) – Third Day of “normal” steroids. Didn’t sleep well, don’t feel good. Shouldn’t be going to work but boss is on vacation. Start getting ready for work very slowly. Almost finished and ready to go then migraine hits hard. Have to admit defeat and call in. Huskies surround me before I pass out on couch.

IMG_6475.JPG

My view before I passed out on the couch Tuesday morning.

Mom comes to sit with me for first half of the day. Level of headaches, weakness and exhaustion scaring me. Probably the worse I have felt in my life. Feel I just need someone there because this shit is really starting to scare me. Tom is able to leave work and take secondhalf day shift. We are able to finally get tramadol prescription filled around 3pm. The world is a little better now, except for a headache. Talk to neurologist about all recent symptoms. They will not be putting me on steroids again. However, unfortunately, this is still in the realm of normal for steroids so I have to wait until it passes. Recommend I try not to go to work the next day.

Wednesday (Day 11) – Fourth Day of “normal” steroids. Didn’t sleep the greatest. Woke up in the middle of the night on Tuesday with extreme numbness on entire left side of my body and my entire face being numb. Able to move but felt like my leg was going to go at any time. Able to fall back asleep and felt a little better in the morning. Made it to work but left a hour early. Everyone seemed to think I looked pretty bad.

Thursday (Day 12) – Fifth Day of “normal” steroids. Feeling more like me. Able to go to work and feel somewhat normal. Left side fairly numb and face feels a little weird. Most of evening spent at home on the couch with heat pack on head with sinus pressure.

Friday (Day 13) – Sixth Day of “normal” steroids. Feeling pretty good in the morning. Hour or so into the work day whole face goes numb again. So numb I feel weird pressure on my eye sockets and on my right eye. Call neurologist because once again I am pretty scared. During their return call they inform me they are very concerned I am having some major MS activity and they would like to do an MRI as soon as possible. Of course nothing can really be done for the numbness in the face at this time. Schedule an MRI for Friday, August 12th. Finish the work day with the numb face then head home. Eat dinner then the extreme headache attacks begin. I start get series of pulsing sharp pains close to my temple. It feels like I keep getting hit in the head. It continues for probably at least an hour until we figure out it was probably caused by dehydration. After I started just downing water it starts getting better bit by bit. Eventually I am able to sleep.

Saturday (Day 14) Seventh Day of “normal” steroids. Feeling back to normal except for facing being numb. Able to walk the crazy huskies and run out to store. Have a relaxing day at home then a movie night out on our deck with a few friends.

Sunday/Today (Day 15) Eight Day of “normal” steroids. Face and left side of body is very numb. See a morning showing of Jason Bourne movie in movie recliners but then head straight home. Reality of the past few weeks has set in. Emotions up and down and sometimes not even existent. Emotional numbness…

Running and sports are what usually help me in this situation but obviously the body needs rest. No marathons or probably even half marathons for the rest of 2016. Just in a state of stun at this point. Feels like a lot of things have come crashing down in two polarizing weeks. Still hopeful, just unsure what to do next. Not sure how to fix this and get back to me.  I have seen glimpses of me the past two weeks but been very few and far between. Feel I am fighting back but this is going to be one hell of a fight this round.

 

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s