I have decided to change the main focus on my blog from just running with MS to more of just my MS life but still covering the active side of me. Things have been rough with the MS the past few months so running has pretty much stopped entirely. I have been jumping on my bike trainer when I can but having a lot of issues with my left side which gets inflamed with a lot of exercise most days. Some days exercise helps but that is rare. I am hoping this slight change in focus will get me back on here a little more.
I have switched things up with my main MS treatment as well. When I was first diagnosed with MS I started on Copaxone but it didn’t help. I moved on to Tysabri, Rituxan and finally Tecfidera. Tecfidera has been going well for the most part except for the past 6-12 months. This year my doctor gave me the option of Lemtrada. I thought Lemtrada over for about 5-6 months and decided to give it a try. It sounded like my best option to get things under control. Yesterday I started my first day of Lemtrada. It appears I have been lucky so far with little, minor side effects. I have had some minor headaches off and on. My appetite can change from being hungry to being a little queasy quickly. My most noticeable side effect has been from the steroids. I have only sleep about three hours in the past 36 hours. Its not unusual for me to have a night when I only sleep five or six hours but three is pushing it for me especially when my body is getting hit with a lot of different drugs. I will try to do more updates as the week goes on. After the first two days I expect I will just become more tired and achy as the week goes on. Here’s hoping that is all.