Back To “Normal”…Well, Almost.

Just a quick update! I am starting to feel back to “normal”…meaning the MS has calmed down and gone back to the “normal” everyday symptoms so I’m not great but better. Just after I started feeling better from the steroids last week I got hit with an annoying summer cold. The cold made staying very still for my MRI on Friday a lot of fun. I am still struggling with the cold, but I did find out today that even though I had all these crazy symptoms recently that there was no new progression on my MRI from Friday!!! Very happy to hear this, but does have me a little concerned that I still had these new symptoms. Guess time will tell if these new symptoms were caused by the stress of the steroids or something else. Hope to get over this cold very soon and get back to running! Watching all these Olympics is making me itching to get back out there!

That is all for today. I hope to get back into blogging more as just sharing my story Two Weeks of a MS Life seemed to really help me deal with all those emotions. It also seemed to help a few people realize they aren’t alone in this crazy MS fight!  Fingers crossed I can keep it up!

Two Weeks Of A MS Life

Sunday (Day 1) – Left for a 5 mile run at 7:15am. At about 3.5 miles into run entire mouth goes numb. After cooling down at home the mouth has calmed down but notice there is a pulsing numbness in left foot, similar to the sensation of a cell phone vibrating. Continues throughout the day. I decide to distract myself with Mario Cart and Xbox Kinect Sports.

Monday (Day 2) – Back to work. Cell Phone Foot still present and really starting to get annoying. Mouth feels off but not too bad. Decide to contact Neurologist about symptoms. Schedule for appointment with Nurse Practitioner for Tuesday morning.

Tuesday (Day 3) – Cell Phone Foot still there. Appointment first thing. Decide I need to go on the “MS Steroids” (aka freaking high dosage of steroids) for the first time in over three to four years. I was able to get steroid pills right after appointment so jump right in. First night didn’t sleep well. Previous rounds of steroids didn’t affect sleep for a few days.

Wednesday (Day 4) – Second day of “MS Steroids”. Cell Phone Foot still there but little more distant. Feeling pretty energized from steroids which is good because first there is a full day of work then off to watch Real Madrid vs Paris Saint Germain at OSU Stadium with boyfriend, Tom and my brother, Mark. (Steroids did help me stay awake for the game…maybe a little too much because I only sleep 3.5 hours that night.)

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Real Madrid vs Paris Saint Germain at OSU Stadium

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Thursday (Day 5) – Third day of “MS Steroids”. Cell Phone Foot still there a little but easier to ignore. Feeling pretty good on energy because its second busy day. Full day of work then off to Coldplay concert at Nationwide Arena with Tom! Awesome night! Steroids helped me stay awake again but little too much. Luckily we were in the first row of the balcony so we didn’t have to stand!

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Friday (Day 6) – Fourth day of “MS Steroids”. Back to work. Not feeling the greatest. Tired but also some cognitive fog. Also not the steadiest on my feet. End up leaving work a few hours early and my parents drive me the hour home. (My normal work commute is about 55 minutes, one way.) Spend the rest of the day in bed.

Saturday (Day 7) – Fifth and final day of “MS Steroids”. Absolutely no energy. Feel very weak and have a hard time doing basic every day functions. Have to miss my volunteer shift at CHA Animal Shelter in the afternoon. Old running injuries, IT Band and Back, start to flare and make some sitting uncomfortable. Try to rest as much as possible because my boss will be out of the office the next two weeks on vacation so I will be in charge of the sales department.

Sunday (Day 8) – First day of “normal” dosage of steroids for step down. Assist Tom with changing the oil in my car…well, I sat in a chair and handed him tools. Quickly run out for a grocery trip. Want to rip the head off anyone who gets in my way, even Tom. Stay quiet because it’s the steroids. Come home and complete exhaustion sets in. Going to the bathroom feels overwhelming. Some headaches start. IT Band and Back still hurting but found more comfortable positions.

Monday (Day 9) – Second day of “normal” steroids. Do not feel good. Probably shouldn’t be driving or going to work. Head to work. IT Band and Back still hurting so call primary physician to see if I can get an appointment. Go in that morning. PP able to prescribe me tramadol. Appears stress from steroids has caused some muscle issues and spasms. Left side of neck spasms and stiffens driving back to work from doctor. Decide to leave work early to fill tramadol prescription and to get some rest. Confusion on way tramadol script is written and doctors office already closed. Have to wait until Tuesday to get tramadol. First emotional break down happens. Tired of being in pain and feeling so weak. This isn’t the girl I know!

Tuesday (Day 10) – Third Day of “normal” steroids. Didn’t sleep well, don’t feel good. Shouldn’t be going to work but boss is on vacation. Start getting ready for work very slowly. Almost finished and ready to go then migraine hits hard. Have to admit defeat and call in. Huskies surround me before I pass out on couch.

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My view before I passed out on the couch Tuesday morning.

Mom comes to sit with me for first half of the day. Level of headaches, weakness and exhaustion scaring me. Probably the worse I have felt in my life. Feel I just need someone there because this shit is really starting to scare me. Tom is able to leave work and take secondhalf day shift. We are able to finally get tramadol prescription filled around 3pm. The world is a little better now, except for a headache. Talk to neurologist about all recent symptoms. They will not be putting me on steroids again. However, unfortunately, this is still in the realm of normal for steroids so I have to wait until it passes. Recommend I try not to go to work the next day.

Wednesday (Day 11) – Fourth Day of “normal” steroids. Didn’t sleep the greatest. Woke up in the middle of the night on Tuesday with extreme numbness on entire left side of my body and my entire face being numb. Able to move but felt like my leg was going to go at any time. Able to fall back asleep and felt a little better in the morning. Made it to work but left a hour early. Everyone seemed to think I looked pretty bad.

Thursday (Day 12) – Fifth Day of “normal” steroids. Feeling more like me. Able to go to work and feel somewhat normal. Left side fairly numb and face feels a little weird. Most of evening spent at home on the couch with heat pack on head with sinus pressure.

Friday (Day 13) – Sixth Day of “normal” steroids. Feeling pretty good in the morning. Hour or so into the work day whole face goes numb again. So numb I feel weird pressure on my eye sockets and on my right eye. Call neurologist because once again I am pretty scared. During their return call they inform me they are very concerned I am having some major MS activity and they would like to do an MRI as soon as possible. Of course nothing can really be done for the numbness in the face at this time. Schedule an MRI for Friday, August 12th. Finish the work day with the numb face then head home. Eat dinner then the extreme headache attacks begin. I start get series of pulsing sharp pains close to my temple. It feels like I keep getting hit in the head. It continues for probably at least an hour until we figure out it was probably caused by dehydration. After I started just downing water it starts getting better bit by bit. Eventually I am able to sleep.

Saturday (Day 14) Seventh Day of “normal” steroids. Feeling back to normal except for facing being numb. Able to walk the crazy huskies and run out to store. Have a relaxing day at home then a movie night out on our deck with a few friends.

Sunday/Today (Day 15) Eight Day of “normal” steroids. Face and left side of body is very numb. See a morning showing of Jason Bourne movie in movie recliners but then head straight home. Reality of the past few weeks has set in. Emotions up and down and sometimes not even existent. Emotional numbness…

Running and sports are what usually help me in this situation but obviously the body needs rest. No marathons or probably even half marathons for the rest of 2016. Just in a state of stun at this point. Feels like a lot of things have come crashing down in two polarizing weeks. Still hopeful, just unsure what to do next. Not sure how to fix this and get back to me.  I have seen glimpses of me the past two weeks but been very few and far between. Feel I am fighting back but this is going to be one hell of a fight this round.

 

MIA

A girl has been missing the past two years…

A girl who was tomboy and loved playing in the dirt…

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A girl who fell in love with soccer at a very young age…

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A girl who thought it was a good idea to run track and play club soccer in one season…

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Track Girls 2010

 

A girl who enjoyed that she was feared on the soccer field therefore was nicknamed “The Wall” and “The Rock”…

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Seniors and Coach 2002

A girl who left high school with some athletic awards because soccer and track were a serious business….

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Soccer Awards

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Track Awards

A girl who left to play soccer in college but developed a back injury so turned to running…

A girl who graduated college and became a woman in time to deal with her Multiple Sclerosis diagnose in 2009 when she was 25 years old…

A woman who decided to say fuck you MS and complete her first marathon in October 2010 even though she had been sick the two days leading up to the marathon…

Cbus Marathon

Right After  Columbus Marathon 2010

A woman who kept pushing to run three more marathons in 2012 including one in Dresden, Germany…

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Right after the Dresden Marathon with my sister Sara. I was a little tired.

A woman who vanished late 2013…

There are rumors she met a guy and moved to Columbus, Ohio…

It’s 2016…I think it’s about time I found her again…

I Can Hear You!

Happy New Year! I hope everyone had a great holiday season. I am still here…fighting a few MS issues but plan on getting back in shape for the 2014 season. I am still working on the training schedule and hope to run my usual spring half marathon, The Capital City Half Marathon, in May.

This afternoon I was reading an article my brother-in-law sent me about updates on marijuana for treating MS and noticed another article to the side related to hearing. The past year or so I have developed hypersensitivity in my left ear when the left side of my face goes numb so the article caught my interest. I was not aware that hearing hypersensitivity was indeed a “common” symptom of MS. I just thought I was weird…well, weirder then I already thought. 🙂 Has any one else experienced this symptom? What have you done to deal with it or treat it? I would love any suggestions. Since I am inside sales I don’t really have a quiet job. It can sometimes be really irritating and painful when the hearing hypersensitivity starts.

Here is the article if anyone wants to check it out!

Shout Out!

I just wanted to give a quick shout out to a woman who has MS, is fighting cancer, running, knitting like crazy and a mother all at the same time. Her name is Danelle and she emailed me a week or so telling me her story. Definitely check her out sometime at wipninja.com! You can learn how to do all this and kick ass all at the same time! Wish her luck with her fight against cancer! (You can take care of the MS next :-))

Little False Advertising Here

As we all know I haven’t been running. However, I decided to be a spectator tomorrow at the Air Force Marathon in Dayton, Ohio and cheer on my friends. I decided to take a half day at work today and a friend invited me to go with him to the Expo to see if that would help put me in a better “running mood”. Well, one of my other friends running the race said I needed to look at the back of the Kentucky Derby Festival Marathon sheet because he thought I would find it funny. I walked round the Expo (found $10 arm warmers!!) but I didn’t see their booth until the end. I looked at the back and I didn’t get what my friend found funny. It just seemed normal to me. (He is a guy so I had in my mind it was some stupid joke that usually guys enjoy but usually us ladies don’t care for, you know the ones.) I texted my friend and he told me what he found funny.

Flyer For The Kentucky Derby Festival Marathon

Flyer For The Kentucky Derby Festival Marathon

For those of you who don’t remember or are just recent readers, I ran the Kentucky Derby Festival Marathon in the spring of 2012. I started out great but the hills at the end of the course killed me. Majority of the race is flat but where there are hills…there are hills. I thought the elevation chart was pretty misleading or not detailed enough. So, knowing this he thought I would find their first line fairly funny (or at least he did). I looked at their website and the course is still the same but it looks like the elevation chart is a little better. A little better. What do you think?

I am still here…well, kind of…

I know I have been quiet for quite a while now. I have been trying to find the time, energy and right mood to actually write a post. This hasn’t been an easy thing to come by the past few months.

After my quarter marathon and marathon relay in May, I decided to take some time off to heal the knee and other minor injuries I was fighting. Well, that time off was suppose to be about a month. Right now it is still indefinite. The first month or so I was feeling pretty normal and had a lot of things going on. I went to the Bonnarroo Music Festival in Tennessee in June and I was a bridesmaid in one of my best friend’s wedding in July. It was in July when I started to notice some MS symptoms really staying around and not going away. Of course work did get more stressful in July which has not helped the MS situation either. To this day I am still having MS symptoms everyday, usually in my left arm, left leg and left side of my face. We have increased my meds (again) but I am still having issues. I go back for a check up in a little over a week and something needs to change. I can’t run or workout which takes away one of my big stress relievers and mood boosters.

It’s been hard staying positive but hearing every once in a while from my readers (aka you 🙂 ) lifts my spirits. Keep running and moving! I hope to be out there with you again soon! 🙂 Until then I will try to check in every once in a while to update everyone on my status or to share some interesting MS info. Good luck out there!